SEN Nanny/Manny for B8 & B10 (Batten Disease: Visual impairment, mobility and communication difficulties) with PA duties
Location: Hackney E9
Wage / Salary: £15 - £20 gross per hour
Driver: Preferable but not essential
Start Date: ASAP
Days & Hours:
The boys will not be attending school until the end of January 2021 so the selected sennie will work full time (10 hours per day) until then.
Term time, Mon - Fri:
School holidays, Mon- Fri:
SENNIES are looking for an experienced and engaging Sennie to help support a family in Hackney, caring for their 2 sweet boys aged 8 and 10. The parents are originally from Denmark and the USA (where they are currently based), however they have recently moved back to London to continue treatment for B10 at the wonderful Great Ormond Street Hospital. They lived in London previously and this is where the boys have mostly been raised.
B10 is a loving, funny and an outgoing little boy who loves swimming, music, dancing, singing, transport and TV shows like Loves Ben and Holly, Little Princess and Fireman Sam.
Diagnosed with Batten, B10 is blind, with limited mobility (his mobility is currently similar to a 1 year olds) and struggles with his speech/communication (verbal ability similar to a typically developing 2 year old). He is extremely emotionally intelligent, replicating that of a teenager. With that being said, none of B10’s Special Needs have ever stopped him having fun and experiencing the world in his way. Batten is a rare and life limiting disease, however B10 has defied all odds and owing to some fantastic medical intervention, is thriving and his condition improving.
He is a very loving, affectionate boy who is currently undergoing incredible treatment that will help him to keep some of his mobility for longer. He is a unique and wonderful child who is a pleasure to care for.
B8 is a cheeky, sweet, funny and opinionated little boy. He loves brother very much and often takes on the role of ‘big brother’- something he takes real pride and joy in doing. He is very confident and is eager to return to the UK as, despite mums best efforts, he is adamant that he is very much British!
He loves video games, top gear, reading and is particularly great at Maths!
About the role:
We'd love to find a Sennie who can match the outgoing, fun-loving and positive attitude of the family and bring the same energy into their home. Someone who is able to emotionally engage with both children. Experience with manual handling, physical intervention, diary management/PA duties are a bonus and will strongly support your application. There is already a great structure and routine in place for the boys, and the selected Sennie should be able to get involved with and continue this.
The Sennie’s role will include but is not limited to: full time child care until February 2021, after school pick ups, B10 personal care, preparing dinner, over-seeing dinner time and getting the boys ready for bed. There would be one full day per week where the Sennie would undertake some household PA duties to help support the family, this includes but is not limited to: Staying on top of all school and health appointments, keeping the children's bedrooms organised, prescription pick ups and other duties as set out by the mother. B10 also has bi-weekly infusions and the Sennie will accompany him to these appointments. During school holidays, the Sennie will work full-time during the day providing care, planning activities and ensuring the safety and happiness of the boys.
Due to his mobility issues, B10 is quite heavy, therefore it is important the sennie selected is physically capable/able in order to lift him and assist with his movement as much as possible, to ensure he is able to stay mobile for longer.
It is important that the Sennie(s) can build a strong and genuine bond with both boys whilst setting and following through with clear boundaries, as the boys are very switched on and know how to get what they want. This role requires a flexible, warm approach.
The Sennie selected will be able to follow and support therapies and interventions determined by the family and professionals. A genuine interest in working with SEN children is a must.
If you meet the above criteria and are looking to find a new wonderful and rewarding position - please fill out our online application form and quote REF 0050
Due to the volume of applicants we will only be in touch with successful candidates.
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